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Evy & Hunter (evyandhunter)


April 14, 2008


Destin, Florida


Acute Lymphocytic Leukemia


Febuary 08


Methotrexate


Yes


Herceptin


Being away from the one I love.


Never give up things can turn completely around.


Smile you never know who that smile could help.


Weakness, bruising, and i just became very ill all of the time.


I am in the middle of a kidney transplant battle.


I will be going in within the next month to get my BMT.




evyandhunter's Cancer Blog

May 2, 2008

Some good news (finally)Views: 230

Well in a last ditch hope we decided to try some type of experimental chemo.
Well I got the good news yesterday that it seemed to be working.
Sorry this isn’t very long I never seem to write as much as Hunter does but i’m sure you understand. ;)
Peace, Love, Health, Happiness.
Evy

Great news about the treatments. Hope you feel better and get well soon

Mac

Dear Evy; What wonderful news that a new chemo has been chosen especially for you. One thing is for sure, hope is eternal and we are all wishing you a recovery from your latest setbacks. It’s terrific that you find the time to write a little bit to us as we are always on watch for your progress. Hopefully you will be up and running soon. Take care. Weezie from Canada eh.

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April 24, 2008

Evy's Infection and Some Thoughts from HunterViews: 284

I know the mystery infection has been tough on Evy. I am certainly trying to keep her spirits up, but I know it’s not easy for her to remain in a positive spirit through all of this. She is obviously uncomfortable and very sick through a lot of this. I’m sure the chemo doesn’t help that either. I am confident that they will be able to fight off the infection, but it’s just a big and nasty trial and error at this point. It must be really frustrating to her that it is taking them so long to figure it out because I know it really is to me. I’m just going to continue to try to keep her spirits up because I know it will go away eventually. Thanks to everyone here for your support of her too. I know she appreciates it.

On a side note, I think our relationship continues to grow stronger. It definitely isn’t easy at times because she is serious discomfort, and we are both under some major stress. However, I keep noticing little indicators that we are moving in the right direction. I think she is trusting me more and more, which is just an awesome thing for me to experience. Evy is a tough cookie, and she doesn’t open up easily at all. She has shared some pretty big things with me over the last couple days that really let me know that she is letting me into her wonderful mind. It’s a great thing! I’m going to continue to try to pick at that brain and become even closer to her than she thinks possible. I really think that will help us both through this ordeal and any others that may arise. I love her very much, and I’m stoked that she is lowering her defenses a bit.

I miss her very much today. We haven’t been in contact since very early this morning. I know she isn’t feeling well from reading her blog here, so I’m trying not to be too needy. I just really want to talk to her again. I’m sure I’ll get to again tonight, but I can be selfish, right? :)

Hunter

I say “Go for what you know!”

You sound like a true champion, believing in your love and that really is all that that matters.

Kudos to you brother…keep ya faith and hang on cousin, cuz it’s a tough and zainy ride.

I have hope that you have a good support network so you can lean on some shoulders and get hearty hugs. If not, keep letting us know what’s going on with y0u!

I’m impressed with your openness and admire your positive mental attitude (PMA!-Peep the Bad Brains for summa dat D.C. rasta-hardcore mang!)

One Glove!
Timmy D!

Thinking about today and send some hugs you way.

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Mystery infectionViews: 269

I have been fighting this new mystery infection I have now for well three days i think maybe more being in here I loose track of time.
I have now been on three diffrent antibiotics for this and nothing seems o help if anything it seems to be making it worse.
I am running a high fever and having chills at random times throughout the day. Hunter seems to be trying so hard to keep me positive but it is even harder when I feel like the death.
Peace Love Health and Happiness
Evy

Dang Gurl, Your situation sounds really tough.
I hate to give advice, I really hear how difficult your situation is and how much pain you are experiencing.
However, do you have access to a case manger or therapist there at the hospital? They may be helpful with communicating with hospital staff and helping you to access services that the daily staff may be having difficulty helping you access.

Just a thought, We are rooting for you and hoping that the infection is taken care of soon with as little pain as possible.

Timothy

Hang in there, we are all cheering for you.

Dear Evy; It sounds so awful what you are having to endure. I agree You need someone to find some extra help for you at this time. Scream you know how the squeeky wheel gets the grease and now its your turn to get greased if you know what I mean. Take care, prayers are being said constantly. Weezie

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April 17, 2008

TodayViews: 322

Well what can I say about today.
I honestly think my world froze in place.
I was told today that I am now a stage 3.
I’m almost numb and i’m not sure if it has soaked in yet.
Well i’m not going to type much just figured I would let you know.
Evy

Hi there gal, I can only say I am here to love and Support and love you.

:0)

Sherri

Dear Evy; I know you are in shock with your recent news. This must be a terrible moment and one which you had hoped noone would say. I am so sorry. There are no words when it comes to this kind of thing. Prayers from everyone on this site is wht might help. I hope you hear from them. Not sure if you got my last remarks to your last post. Try to go to pbs.org and click on Take One Step/Cancer. There you will find a very interesting perspective from a group of Doctors who are fighting cancer also but still treating their patients. I think you might get something out of the programme. I saw it the other night and highly recommend it to others. Take Care Evy and thanks for posting your progress. Weezie

THanks doll i will look at tht tonight. I love how people on this site are so supportive

Stage schmage!

Post up and keep the love that you have with that man goin on!

Ya’ll can do it together and make it through stronger, smarter and on the fly tip! Word!

HollA!

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I wish I could do more.Views: 354

I (Hunter) feel really helpless in this whole situation. From what Evy tells me, her ALL has gotten worse. I know she is in a good deal of pain and discomfort, and it kills me that I can’t do anything about it. Evy is a wonderful girl; in fact, she is the most amazing person I ever met, and she certainly deserves much better. I know it’s not my fault, but I can’t help but feel that I am letting her down in some way.

I find myself always thinking back to a story she told me that gives a glimpse of what an awesome person she is. She came across a little girl in the ER a couple weeks ago who asked her if she knew sign language. She began to sign back to her, and the girl told her that she had a brain tumor. Evy then gave her a little info about her situation and gave the girl her phone number. She told her to let her mommy call and set up a little lunch date for the two of them at some point. I just thought that was one of the sweetest things I have ever heard. Evy is one of the most giving and caring people I have ever known, and I love her very much.

I hope to continue to be here for her on a daily basis to help her keep a positive attitude. I still think we can make it through all this, and I want to continue to let her know that. This girl is my world, and I am certainly not going to let her go without an epic fight. She is a warrior, so we might have a Rambo kind of thing going here. I think she could take out a whole army, and I plan on being in the audience…or the comic relief sidekick.

Dear Hunter; you and Evy sound like wonderful people. Your love for her is real and compassionate. Don’t ever forget that you nor Evy caused this disease. Too many times we feel the guilt because we feel helpless. Just being there for Evy, supporting her is just as much help as you can give at this point. It is just as painful to watch a loved one struggle and fight but this is what humans do. It is our own personal test, one which comes before us all as we are all mortal. I saw a programme on PBS last night which might help you. Go to pbs.org and click on Take One Step/Cancer. This is a panel of Doctors mostly who are surviving with Cancer and it talks about how they treat their patients. You might find inspiration there. My hope is that you stay strong, get rested for you are now on a heavy load journey. My prayers are with you. Weezie from Canada eh.

You Go Bro! That’s spoken like a peaceful warrior!

Its gotta be so tough to be you right now (both of ya’s), but it sounds as if your approach is not only intelligent but sensitive and heartfelt.

I love my father a great deal and seeing how bright he’s shining right now is incredible. The story about the little girl in the ER is outstanding! I have been learnin ASL since a skateboard homie of mine is deaf, so he’s been schoolin me.

POSITIVE!
Timothy
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April 15, 2008

A new hospital maybe a newish startViews: 364

Well I have just checked into a new hospital here in Miami . The staff already seems much more sweet and caring than the previous.
Today I feel horrible.
All I want to do is lay down and continue to sleep for a few more days.
I think I shall.
Well maybe just a few hours.

Hi there,
I am glad to hear that you have found a place that you will be taken care of, along with loving care. I will stop in and see how you and Hunter are doing.

Love Sherri

New hospital? Better staff?
Right on!
Feeling horrible?
That sucks….
Try to keep your head up, remember, your man is pining for you!

One Love!
T$

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Long DayViews: 363

It’s about 9:00 here locally, and I (Hunter) am stuck in my cubicle at work. Evy called and woke me this morning as she usually does, and I was of course very happy to hear her voice. There is just something amazing about hearing her cute little voice to ring in a new day. I can’t remember any time before meeting Evy that I actually smiled while getting ready for work.

This morning, Evy wasn’t her normal happy morning self. She sounded pretty drained and a little down. She said she didn’t feel very well, but she still managed to keep a positive attitude and get me up for a long day of work. I know she had a stressful day yesterday, so I’m hoping with a full day of rest and a new comfy hospital, she will be feeling better and in better spirits when we talk later this evening.

I_want_to_speed_up_time

Like I said, it’s 9:00, and I am missing her already. She really needs her rest today, especially since she isn’t feeling too well, but I can’t help but feel the need to talk to her. She really helps me through the day. I know she probably won’t respond to any of my emails or call me until late afternoon, so I’m just trying to plug away and make it through another long day to hear her beautiful voice again tonight. I love her very much and can’t wait to tell her once again. Sleep well and feel better, angel.

Hi Hunter,Evy.

It looks like there is a lot of Love and Support here.

I will keep you both in my thoughts and prayers.

Hugs Sherri

Dang! Ya’ll got it good…or is it BAD?! So nice to hear about your happy relationship and the positive connection between you two! Yay!
I too will be thinking good thoughts of you two with the hope that you reunite soon and are in improved health.

A 9 hour difference is huge. When I was in school in California , hearing about my Dad’s day to day pains here on the East coast was brutal…I felt so angry, blue, and helpless.

With lots of positive vibes goin your way!
Timothy

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April 14, 2008

My First Blog (aka. Blog Number One)Views: 377

Well this is coming from the laptop of me, Evy, sitting in my hospital bed alone.
Well yes, today has been eventful. Another kidney failed.
I’m transferring to a different hospital tomorrow due to lack of proper care.
But yes, this week has just been a yin-yang week.
Bad things have happened, such as major pains and kidney failure, but good things have happened also.

WOW what a picture this evokes….your photo is very cute. What’s the pooches name?

Take Care,
Timothy

Greenly! She’s a good girl .

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Evyandhunter's Stats

Posts: 8
Photos: 2
Events: 0
My Supporters: 10
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Comments: 19
Views: 2797




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